The Ichthyosis Support Group
Team Waverton don their walking boots for this wonderful charity
On Saturday 22nd July, Team Waverton joined the ranks of the ISG supporters to walk the 25 mile towpath between Reading and Newbury in support of The Ichthyosis Support Group – a fantastic charity dedicated to supporting those affected with the rare genetic skin condition.
Waverton staff members, proudly clad in orange and white, trudged the towpath, hopped over locks, and braved the British weather, completing the walk within a commendable 9 hours to mark the charity’s 20th Anniversary Year and raise public awareness.
The event was a huge success, with a fabulous total of £7,200 being raised to date. This money will help to continue funding invaluable research into this rare condition and will assist in providing much needed support to those affected by ichthyosis through literature and educational conferences.
Ichthyosis is a rare genetic skin condition affecting as few as 1 in 300,000 people. It is a lifelong condition, normally presenting itself at birth and can be fatal, especially in the early weeks of life. The Ichthyosis Support Group was formed in 1997 by a group of individuals affected by Ichthyosis to create a network of parents, sufferers and medics. The “Walk for Ichthyosis” challenge was subsequently started in order to help the only UK-based support group provide help to those affected and raise much needed public awareness and education.